Tuesday, November 27, 2012

A very good day!

As I am sitting down to type this I am feeling very humbled! First we will start with the doctor stuff. I went in today for labs and to speak with a PA. Everything looks good with me no sign of GVHD and no fevers! My lab works was pretty much the same. Except, platelets they are up again to 153. This so remarkable for me to be this high. In the whole journey I have had with aplastic anemia I have never seen numbers like this! It's great I am hoping soon to feel the effects of high blood counts. So despite having to do the magnesium today and tomorrow my spirit has have been lightened by amazing people. An anonymous package was left on my door at home tonight. The package was filled with a ton of wonderful food for my family. That's not even the most remarkable part it also had a note. The note explained to us how we should not stress or spend money on Christmas. That it would all be provided for us! This is very humbling and very amazing. Some angels knew we were stressing about how to take care of our responsibilities and give our kids the Christmas they deserve! To whom ever has done this wondrous thing for my family THANK YOU! I can never express how much it means to us! Rylee in all her cuteness just says duh it's Santa! The faith of the littles can teach us so much!

Sunday, November 25, 2012

Day 27 post transplant

So it's been a few days since I have blogged. SORRY! A lot has happened first off I am out of the hospital. My counts are getting very close to a normal level! That is the most amazing part to me is I am transfusion free! I am staying in sandy UT with my mom and dad at my Uncle Ken's house. Thank you so much Ken for making it available to us! I have about another 60 days to spend in Utah before I can return home. Each day I am getting stronger and stronger. We are trying to keep me infection free and clear of GVHD (graft vs. host disease). So each day I rest plenty, make sure not to miss taking pills and I hook myself up to IV Magnesium for about five hours. Sounds like fun huh! Today I actually got out of the house and went to Walmart. It was a fun outing but very tiring. We got a small Christmas tree to put up here and a foam mattress for my very hard bed! I hope I sleep good tonight. I miss my family and home very much! I miss being mom and seeing my kids everyday. They are growing up way to fast. I am going to Christmas shop on the Internet starting tomorrow. That should give me something to do! My hair is still gone but we bought me a nice wig that looks natural. The side effects of the drugs are deal able. Not ideal but not the worst thing ever. Most days I am pain free but somedays like tonight my legs ache from the new bone marrow growing they tell me! I go to the doctor twice a week and I will try to blog after those appointments with an update. I go again Tuesday. I have been very blessed by so many people thoughts and prayers. My dear sister set it up so I have a card or present to open everyday and I am very great full to those that have participated in that. It is uplifting to know so many care, some I don't even know! Thanks Maja! For tonight that is all I have but I will try to do better!

Tuesday, November 6, 2012

Day 8

Sorry it has taken me awhile to post! It has been a rough week! So I went through all four days of chemo really well. The transplant happened on Monday the 29th. My amazing big brother donated bone marrow to me. The process of his donation was a full surgery. They put him completely out and then went into both of his hip bones and aspirated the bone marrow. Then they took the bone marrow and tested and cleaned it so I could receive it. I had extra people here that day to witness the big day with me. My mom, my hubbie, my wonderful sister Maja, and my super hero Phillip! They put the bone marrow in my central line. It is a lot like a blood transfusion. Then the next few days were really rough on me. I spent a lot of time being nauscious and throwing up! The doctors and nurses are great and helped manage the symptoms. Each day has a different challenge and each new medication brings on new side effects. Today the doctor came in and told us some good news. He says I am doing better than 99% of his patients. That is very encouraging news. I just keep praying that things continue to go smoothly. The process is extremely stressful not having my kids and hubbie around as much as I would like. I miss my friends and their kids too! I am very thankful to my mom and her putting her life on hold to be here with me everyday! It is huge sacrifice for her and she will never know just how much it means to me. I am also very thankful to all the people who made our benefit a success so that money is not a thing we have to stress about! So thank you very much to each and every person! Time is flying by and soon I will be out of the hospital and on my way to recovery!
Thank you all and I love you all!