Day one of treatment July 11

So the treatment started today and it turned out to be very long unsuccessful day! I spent over five hours at the clinic! Once the medicine finally started I had a reaction about 8 minutes after it hit my body! I got really hot and clammy and very nauseous. They stopped the medicine almost immediately I cooled down and started to feel better. They decided to give me more benadryl and another drug to help the side effects stay minimal. I need to go to the bathroom and I got up to go and my mom was helping me. We were trying to get all the machinery away from the bathroom door and I passed out luckily my mom was close and nurse came fast and helped me to the ground. I woke up on the floor super disoriented and freaked out! They got me back in bed and got everything restarted we just went slow at first to see what I could tolerate once they got up to normal speed I got really nauseous and I threw up and got really shaky and cold! At that point the doctor decided to stop for the day and start again tomorrow! Let's hope my body can tolerate it better!
Again thank you for the love and support!

Well things have been uneventful as far as my health goes! The only thing that has happened since my last post is that I had my galbladder taken out. It was a very easy experience and I have been feeling pretty good without it! The future has a lot in store. My doctors and I have decided to try the drug treatment again. It must have worked a little because my bone marrow has been working, just not as much as it should be!!! So in nine days I will start the treatment again. This time we will try it in combination with a drug called tacrolimus it is a lot like the cyclosporine but hopefully my body will tolerate it better! As long as I don't have any seizures I will be able to stay on it longer and hopefully my bone marrow will respond to it! We are being optimistic that it will work and things will improve so I don't have to have a transplant!! It will be a rough couple of weeks I just hope I can deal with all the side effects and the doctors and I can work together to get through the rough weeks ahead! Thank you everyone for your continued support and love!!!